Resources
Cystic Fibrosis

Web sites

American Lung Association
The American Lung Association’s Web site helps you to learn more about your lungs and lung disease, and encourages you to get involved by listing special events taking place in your area and suggesting ways you can influence lung legislation. The site also provides information on air quality both in and outside of the home.

Adult Cystic Fibrosis Association
This association provides information for adults with CF regarding the basis, nature, and progression of the disease, as well as the latest treatments and research for CF. It also provides a forum for adults with CF to communicate with each other.

Boomer Esiason Foundation
This foundation provides financial support to research aimed at finding a cure for cystic fibrosis. It is also active in CF education and awareness, aiming to provide a better quality of life for CF patients.

Cystic Fibrosis Foundation
This group focuses on CF education, improving the quality of life for people with CF, and funding research toward a cure for CF.

Cystic-L
This is a free email service dedicated to the exchange of information and support specific to cystic fibrosis.

Genetics Home Reference
A service of the National Library of Medicine, this Web site offers information about genetic conditions like CF and the genes or chromosomes responsible for those conditions.

National Heart, Lung and Blood Institute
The NHLBI Web site contains expert information about heart, lung, and blood diseases, and features links to National Institutes of Health clinical trials of investigational therapies that may become tomorrow's mainline treatments.


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